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EDS from a Parent's Perspective

EDS from a Parent's Perspective

NB: During the welcome to this episode of The Different Stories Podcast and during the conversation itself, you will hear it referred to as The Other Stories Podcast.

That was the original name of the podcast until we were requested to change it in November 2023, due to the presence of another podcast of the same name, of a completely different genre.

The podcast is now known as The Different Stories Podcast across all platforms.


On a mission to raise greater awareness and understanding of connective tissue disorders and the impact they have on the person, their family and carers, in this episode business owner Tanya Gaffon shares her story of being a parent of a child with suspected ESD and Chronic Fatigue Syndrome. Seemingly out of the blue, her young daughter began experiencing pain in her joints and mysterious rashes. Two and a half years later plus a lot of questions asked, she has been diagnosed with a hypermobility spectrum disorder and is awaiting confirmation of a further diagnosis of Ehlers-Danlos Syndrome. But what does all of that mean for her lifestyle and that of the family? A natural sequence to Holly Stone’s story in episode 41, it’s recommended to listen to that one first.

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About the host Rachel Maunder

Rachel Maunder is a Story Coach, helping people find and craft their personal stories for greater engagement through speaking. Her secret sauce includes a blend of an ability to spot the key parts of a story and to highlight those in a relatable way. With a lifelong curiosity around what makes people different Rachel is an advocate and ally of acceptance and inclusion. Combine that with her gentle way of drawing people’s stories out of them and you’ll start to see Rachel’s motivation behind creating The Different Stories Podcast. Rachel coaches individuals and runs bespoke workshops for organisations.

You can find her contact details or book a complimentary exploratory call here:

DISCLAIMER: Any views, thoughts and opinions shared and expressed in this podcast belong solely to the host and guest speakers. Please carry out your own due diligence.


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