EDS from a Parent's Perspective
On a mission to raise greater awareness and understanding of connective tissue disorders and the impact they have on the person, their family and carers, in this episode business owner Tanya Gaffon shares her story of being a parent of a child with suspected ESD and Chronic Fatigue Syndrome. Seemingly out of the blue, her young daughter began experiencing pain in her joints and mysterious rashes. Two and a half years later plus a lot of questions asked, she has been diagnosed with a hypermobility spectrum disorder and is awaiting confirmation of a further diagnosis of Ehlers-Danlos Syndrome. But what does all of that mean for her lifestyle and that of the family? A natural sequence to Holly Stone’s story in episode 41, it’s recommended to listen to that one first. mailto:[email protected] https://www.ehlers-danlos.org/ About the host Rachel Maunder Rachel Maunder is a Story Coach, helping people find and craft their personal stories for greater engagement through speaking. Her secret sauce includes a blend of an ability to spot the key parts of a story and to highlight those in a relatable way. With a lifelong curiosity around what makes people different Rachel is an advocate and ally of acceptance and inclusion. Combine that with her gentle way of drawing people’s stories out of them and you’ll start to see Rachel’s motivation behind creating The Other Stories Podcast. Rachel coaches individuals and runs bespoke workshops for organisations. You can find her contact details or book a complimentary exploratory call here: https://www.rachelmaunder.com/links DISCLAIMER Any views, thoughts and opinions shared and expressed in this podcast belong solely to the host and guest speakers. Please carry out your own due diligence.