Ehlers-Danlos Syndrome: connecting the issues
Ehlers-Danlos Syndrome: connecting the issues
NB: During the welcome to this episode of The Different Stories Podcast and during the conversation itself, you will hear it referred to as The Other Stories Podcast.
That was the original name of the podcast until we were requested to change it in November 2023, due to the presence of another podcast of the same name, of a completely different genre.
The podcast is now known as The Different Stories Podcast across all platforms.
Ehlers-Danlos Syndrome (EDS) is a connective tissue disease with 13* different manifestations or types. The most common of these is the hypermobility type, with stretchy and fragile tissues creating havoc throughout the body and causing symptoms such as joint pain, digestive impairment, chronic fatigue, dizziness and palpitations. The others are extremely rare. In this episode, Holly Stone shares her story of living with the hypermobility type of EDS, how it was misdiagnosed for years and how that made her feel. Holly reminds any listeners who might have similar undiagnosed health struggles: ‘If you can’t connect the issues, think connective tissues!’
*Please note that in the audio recording, Holly refers to 12 different types. This was the case until just a few years ago when a 13th type was confirmed.
About the host Rachel Maunder
Rachel Maunder is a Story Coach, helping people find and craft their personal stories for greater engagement through speaking. Her secret sauce includes a blend of an ability to spot the key parts of a story and to highlight those in a relatable way. With a lifelong curiosity around what makes people different Rachel is an advocate and ally of acceptance and inclusion. Combine that with her gentle way of drawing people’s stories out of them and you’ll start to see Rachel’s motivation behind creating The Different Stories Podcast. Rachel coaches individuals and runs bespoke workshops for organisations.
You can find her contact details or book a complimentary exploratory call here: https://www.rachelmaunder.com/links
DISCLAIMER: Any views, thoughts and opinions shared and expressed in this podcast belong solely to the host and guest speakers. Please carry out your own due diligence.